Teenagers unable to eat due to rare digestive conditions

Like most teenagers, their age, finale is given a cake to celebrate his birthday every year, but he can never eat it – or any other food. If he had done, he would have bleeding internally.
The 14 -year -old digestive system cannot tolerate lipids – fatty compounds or oils that are found in foods – so they have injected them directly into their hearts.
Treatment is a six -hour process that he passes every week because he was four years old, and it has grown twice a week in the last one year as he has grown.
The case of finale is so rare that doctors have considered it to introduce it to a medical journal, as they believe that he can be one of the only ones whose body reacts to lipids in this way.
Dr. Manas Dutta, Chelmsford, an advisory pediatrician at Essex’s Broomfield Hospital, who had born Finale since then said that it was “frightening” how Finale’s body responded to food.
“Even when he was on breast milk, he was reacting,” Dr. Dutt told the BBC.
“We had never seen this type of case before – I remember many days where Finale came to the hospital.”

From Finale, Battlesbridge, Essex, London’s Great Ormand Street Hospital undergoing more than 20 operations as doctors tried to understand their condition.
The 37 -year -old his mother, RHYS, realized that his son was “guinea pig” due to “test and errors”, and it was “a lightbull moment” when doctors finally treated their son.
“It is sometimes heartbreaking—-Do not see what the finale goes through day-to-day,” he said.
“They see happy, chirpi young man, but psychologically he passes away.”
RHYS said that she does not try to hide the sociable aspect of food from her son.
“He always helps cook, we always go out for restaurants, he is always a birthday cake,” he told the BBC.
“He may not be able to eat it, but he is the same as everyone in that regard.”
The finale, which is also autistic, said that the form and smell of food does not hung him or feel that it is missing.
He said, “I know from my feed, so I only see other people eating and it does not bother me.”

The finale receives a lipid infusion through a portakath, or tube, which enters her chest and directly connects to the central vein in her heart.
“We have to fully bypass the path of gastro-intestines,” Dr. Dutt said.
“Not only fat, but he cannot tolerate normal carbohydrates and proteins,” he said.
The finale receives carbohydrates and protein – with vitamins, minerals and electrolytes – three times a day through a separate tube in its stomach.
“I can’t remember when I had (infusion) first because it is just my life – I can’t really escape it,” Finale said.
There is no name for “what Finale said” said, his son was called his position “Finale-Issis”.
“There is no one else that we know that lipid element is directly infected.”
“We are really thinking about reporting the matter to some kind of magazine because this is such a rare situation,” Dr. Dutta said.
It is expected that the finale will eventually be able to do infusion treatment at home instead of traveling twice a week.
“There may be a time to be able to bear fat,” RHYS said, “But if not, we just move forward with our ‘normal’ and go from there.”

Finale has planned to prepare a tower block at Southnd Hospital on 16 May to raise funds for mid and South Essex Hospitals Charity.
“The building is 154 feet (47 meters) – it’s a little more, but I think I will be fine,” Finale said.
“The hospital and all (staff) have taken care of me through my life, and I just wanted to give back to them and raise money to help others.”
Finale’s mother – who completed the same Absil from Finale a few years ago because he was very young – he said that his son was “remarkable”.
“He is the most cute little boy who wants to help other people because what he is doing – I am proud of him.”
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