We stop healthy infants after NHS mistakes, couples tell BBCs
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Two couples have told the BBC that they had gone with abortion after an NHS Trust, who accidentally told them that their unborn children had severe genetic conditions.
They say that errors by doctors at the Nottingham University Hospitals NHS Trust ended their conception.
Another family says that on the day they were due to miscarriage, a last minute scan was changed to their mind and they are now parents of a healthy nine-year-old boy.
Trust, which is currently at the center The biggest maternity check in the history of NHSSaid that its fetal drug teams tried to provide “kind and professional” care.
‘Most impossible options’
“Our daughter should be here,” says Carly Vesan, who ended her pregnancy in 14 weeks.
Ms. Veson and her partner Carl Evern were expecting their first child in January 2019, when a 12-week scan indicated that her child had a high chance of being down syndrome.
He was offered a test, known as chorionic vilus sampling (CVS), to check if his child had a genetic or chromosome position.
Two days later, the fetal care team at the City Hospital in Nottingham told him that initial results indicated that his daughter had a rare genetic condition called Patao syndrome, resulting Dying immediately after.
43 -year -old Ms. Vesan says that she interacted with the fetal care advisor shortly after.
She says she was told that her child would be abandoned with serious care needs, and it could not escape pregnancy.
“This is the most impossible option we have ever made. We thought the best option was to end pregnancy because the child was suffering.”
The results of more detailed analysis of the sample were to return after two weeks. The couple asked if it could show a different result, but they say that their advisor advised them that it would not happen.
The couple decided to have an abortion.
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“This is just a terrible, impossible situation,” says Ms. Vesan. “There was no good result, we had no hope.”
Six weeks after abortion, he was asked to attend a meeting at the City Hospital, which he believed that there was a regular follower.
Ms. Vesan says, “(Advisor) just went inside and what she said was the first thing, ‘I have got something to tell you, your results have changed.”
Another test called a long -term CVS culture, showed his daughter, who was named Ladiberd by the couple, he had no chromosome abnormality.
When he asked if his daughter would have survived, Ms. Veson says that the doctor told the couple: “Okay, you could have aborted anyway.”
“It always gets stuck with me – it was almost malicious,” she says.
Incorrect diagnosis
Another family, who wants to remain anonymous, told the BBC that they had ended their pregnancy in 2017, as they were also incorrectly stated that their child had a genetic condition.
After a regular scan in 20 weeks, they say they were told that some unusual growth could happen and they were referred to as a fetal care consultant at the City Hospital.
A few days later, he was informed that his child’s possibility was a life-limiting disease. As the condition was inherited, the parents were genetically tested to see if they were carriers, which the trust completed and promised to give fast results.
The BBC is not identifying the situation to protect the family’s confidentiality at his request.
Several weeks later, not with the results still, the family says that the hospital called them to tell them whether they have less than 24 hours whether to end pregnancy because more to take out later Will be complicated.
By this point, pregnancy was just one day under 24 weeks, the legal limit for abortion under most circumstances.
Given the clear advice from doctors – that the child cannot survive or die immediately after birth, or life -a system – the couple decided to end pregnancy.
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When a post -mortem was done, the child did not get the situation. The trust, they say, have never provided them for explanation for wrong diagnosis.
Mother told the BBC, “I was asking the hospital every day for those test results, I had a very desired child inside me.”
“I needed to know if to disconnect from pregnancy, as I didn’t know if my child would live. To end, decide by the next day or it would be too late.
She says that she was over on the labor ward, which was surrounded by other mummies who gave birth to healthy children.
The investigation of maternity care provided by Nottingham University Hospitals NHS Trust is currently underway.
Treatment received by more than 2,000 families in two hospitals of the trust – Rani’s Medical Center and City Hospital – Senior Midwife Donna Okenden is being investigatedWho led the reviews at Maternity Care Scandals in Shreyusbari and Telford.
The investigation includes a review of prenatal care provided by the trust. A separate police investigation is also going on.
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A third family has told the BBC that after being told by the trust-taking team of the trust, they almost ended that their unborn child was likely to have a life-limiting genetic position.
They want to be anonymous because they have not told their son, who was born with any health issues, how close they came to end pregnancy.
In 2015, the couple had already experienced a stilming when he became pregnant with his son.
An eight -week scan showed that according to the father, “a black hole in the middle resembles”.
“We were told that our child was not emptying his bladder, this was a great shape,” his mother remembers. “If he cannot empty his bladder, he would either be congenital or live a very little life.”
‘It’s going to die’
Another scan was ordered, which parents said that an even bigger black size was shown.
Children, they say they were told, can develop genetic conditions that will be inconsistent with life. They say that they were offered an expiration for medical reasons.
“I really remember us, then telling friends, not with a happy, not with joy, ‘I think, we are pregnant’. This is ‘we are another child and it’s going to die’. ( We did things like this plan that he will be buried at the place we now meet (where his brother is buried), “his mother says.
After a lot of discussion, the couple say that they felt “there was only one option to make”.
They moved towards the queen’s medical center to take pregnancy -ending drugs.
However, the father requested a final scan “And with absolutely madness, while scanning, our young child emptied his bladder. So we did not end pregnancy.”
Parents say that the trust has never clarified them about what happened.
Nottingham University Hospitals NHS Trust told the BBC that they could not provide specific answers, as two families were speaking anonymously.
Chief Executive Officer Anthony May said, “Our fetal drug teams provide regional service to hundreds of women and families in Eastern Midlands for a year.”
“For women and families using this service, there will be times when they will face very difficult and long -lasting decision making. We try to support them in the most kind and professional way. And we always want to hear from families who do not feel that their experience matches that ambition.
The maternity care review of Donna Okenden at the Nottingham University Hospitals NHS Trust is expected to hear from about 2,500 families in total, with the publication of a report, now expected in June 2026.
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