Blind Content Creator and Tikok Star Lucy Edwards says that she is “very excited” to be on a health kick to undergo IVF for gene editing purposes, but reveals the dilemma that she faced to screen a lot of genes, which made her blind.

The 29 -year -old BBC Access tells All Podcast, “I am very broody.”

Lucy and her husband Oli got married in Kev Garden two years ago and are now ready to start a family – but there are complications to consider.

Lucy has a rare genetic position disorganized pigment (IP) and lost his vision for the age of 17, a few months after meeting Oli.

The condition runs through the female line – Lucy’s mother has an IP, although she is not blind, her grandmother also did and her great -aunt was blind in one eye.

Lucy is completely blind, but, if she was a boy, she would not have survived.

The unusual IP gene is located on the X chromosome. Women have two X chromosomes, while men have X and Y, meaning that the presence of genes can be more disastrous in male pregnancy.

“My grandmother actually performed nine abortion,” says Lucy.

It is one of the facts that Lucy and Oli played in a complex decision made to choose pre-departed genetic testing, a special type of IVF where embryos are made outside the body and examined for genetic conditions. Only those embryos that are not affected by the position are kept back into the womb.

Without medical intervention, Lucy states that there will be four possible consequences for any pregnancy: a healthy and unaffected boy or girl, an affected boy he will possibly abort or who will be born with severe brain damage or an affected girl.

She stops, then laughs: “It feels terrible, isn’t it?

And that is the quality. IVF will edit the thing that has made Lucy which he is today – a journalist, advocate, writer and broadcaster.

This is a emotional subject of debate. The most famous conversation is around the Down syndrome and the number of women who choose to cancel pregnancy, when their baby is tested and diagnosed as the condition. The question is that people on the lives of other people are around the value that cannot look like our own.

In 2021, the pracharak heidi croster, who is themselves down syndrome, challenged the law, allowing the fetus to be born with birth. She took her case to the High Court, arguing that the rules were discriminated against the disabled people who could live a good life. He lost the case and later the argument he appealed to the court. The European Court of Human Rights (ECHR) later rejected it, but the Heidi continued the campaign to reverse the law.

This is something that is very aware of Lucy and she and her husband have spent a long time considering.

“It is understanding that it is removing my part that makes me,” call me, “Lucy. “This is such a personal decision and I know that I am opening myself for possible designer baby discussions, but I know I am doing it for the right reasons.”

Lucy says that the first IP is being diagnosed with IP and then losing her vision as a teenager was both painful events and she wants to reduce the possibility of abortion to limit the painful load of any future.

She says that she found it impossible to consider a child naturally “deliberately”, once she knew that science was available to give a healthy start to a child.

“If I had a child and, inadvertently, I had a gorgeous, grand child with the disabled, I will be so grateful, so happy and surprised but intentionally with this gene? That’s why we are doing IVF.”

IP does not just cause blindness, it can also cause severe epilepsy and more difficult results. Lucy states that being an option to ensure complications, it was not felt that the previous generations of both a responsibility and a privilege were not with the previous generations.

“Whether we like it or not, we have to be responsible here. Maybe a responsible issue for you, if you have an IP or any other genetic disorder, a child is naturally and we are not justice to you in any shape or form, this is just our decision.”

In response to his openness around this decision, the comments were highly positive from Lucy’s fans, which he may feel because she is “disability positive” in her everyday life – “I love beating blind,” she often tells.

But Lucy says that reactions around the world are different. When she was working in Japan and her content was reaching the audience from her story, she faced a lot of trolling.

She says, “I got a lot of derogatory comments that go in my spam filter, the question of why I will be a mother.” “I know I am going to misuse it very much, but I’m just going to block them.

“I’m going to recover. I think all other mothers who have come in front of me are enabled, competent and flexible.”

Lucy, who is known for her, how a blind girl … is very happy with the chances of IVF, the series of videos, but she has also been clear about the fact that she is not currently eligible, due to her current weight, a sensitive element of IVF treatment that keeps many people with her.

The NHS guidelines specify that your body mass index (BMI) should be 30 or to qualify – a healthy BMI is considered between 18.5 and 24.9.

“I need to be a BMI of 30 and I’m so open that I need to lose 9 kg,” says Lucy. “I have already lost 15 kg.”

His health journey includes swimming, lifting and several runs, in which Oli has seen him. She has also found a love for the nutritious food of batch cooking, which she posts about all her channels on Instagram, Tikok and YouTube and the workaround that she has developed as a blind cook.

“I wanted a positive representation of reducing weight online because it all is about this blinking jab,” she says, referring to weight loss injections. “I just wanted to lose it healthy, was very good food, talk about food and just smile and run.”

Once she hits the required BMI, Lucy will qualify for three rounds of IVF on NHS.

She will contact her advisor, after which she will have to offer her DNA for “spit in a cup” and genetic testing and analysis.

Over a period of about three months, a genetic team “will be a Bispoke test to find the gene inside my egg,” Lucy explains.

Meanwhile, Lucy will inject itself with trigger shots to stimulate Rome within its ovaries, which will be recovered to increase the number of eggs produced, and then made into the fetus with the sperm of Oli.

The fetus will be tested then, so there will be possible candidates only without IP genes. The fetus will be “reshuffled” about “Lucy and Oli, which will be chosen in terms of gender or other genetic properties, and transplanted into Lucy, which will take the child to the term.

Lucy cannot wait for the moment when she keeps her child in her arms.

“It will never stop having one thing in my mind that this gene is being erased,” she believes. “But I am very happy in my decision.”

A few days ago Lucy posted on Instagram, her cardigan tightly tightly tightened to make it small and fit with a hairband.

“I have lost so much (weight) that my clothes are very loose now so we had to tie it with a bobley,” she tells her followers.

“Fingers crossed a few weeks away from playing the clinic (we).”

You can hear Lucy Edwards BBC uses all BBC seems to be. Take membership and email your ideas on accessall@bbc.co.uk