The birth of a girl is born out of the chest with the birth of a girl, pioneering is a pioneering surgery

The birth of a girl is born out of the chest with the birth of a girl, pioneering is a pioneering surgery

Sarah
BBC News, East Midlands
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Venelope Hope Wilkins, who is now seven years old, was born outside his body from his heart

Venelope Hope Wilkins made medical history when she was born outside her body in 2017 with her heart.

Described by experts as “a kind of”, Vanelope performed three operations to keep his heart back into his chest, due to an extremely rare condition called Ectopia Cordes.

The hospital where she was born – Glenfield Hospital in Lester – says it does not know any other case in the UK where the child has survived.

Now at the age of seven, Vanelope has a groundbreaking surgery to re -create a protective cage around his heart – using its ribs.

The BBC was given a special access to the theater, when the operation was performed at the East Midlands congenital heart center located in the Lecester Royal Information last Wednesday.

Warning: This story has an image of surgery

Glenfield Hospital
A team of nearly 50 employees worked to bring Vennelop into the world on 22 November 2017

This is the early morning outside the theater, and a team of specialist medical experts gather for a briefing, which discusses unprecedented surgery.

The vannellope still has no breast, causing its heart to cover just a thin layer of the skin.

Surgeons have come up with a plan to use their ribs to form a protective cage inside his chest.

Advisor Pediatric Surgeon Nitin Patwordan was one of the 50-firm medical teams in the birth of a vnelop on 22 November.

Now he is ready to play a leading role again in surgery, which was never done before.

“I lie if I say I don’t panic,” they say. “But after staying in this profession for so many years, you really look forward to it because at the end of the day, you are doing something that will change someone’s life.”

He remembers that when Vennellop was born, “everything was unknown”, because no one in the country also dealt with a similar case.

A handful of children in America have survived this situation.

Ectopia Cordes affects only a few cases per million – and vinelope was given less than 10% of the possibility of survival.

But he postponed those obstacles and the house was allowed in the hospital after 14 months.

Glenfield Hospital
In most cases of Ectopia Cordes, the heart spreads outside the chest through a partition or absent sternum, or the breast

Since then, Vanelope has to wear a brace around his chest to protect his heart.

He has complex medical requirements, which require one-to-one care, 24 hours a day. He is authentic and non-verbal.

39 -year -old Mam Naomi Findle, who lives in Cliftton, Nottinghamshire, described his daughter as a “happy little thing”, which “brings great pleasure and great happiness”.

She said: “It really feels very proud to see me how far she is, what she is away and what she is achieving. It is a real journey of strength and bravery … she is very brave.”

It is difficult to redeem your daughter at the theater door and tears flow.

“A lot of anxiety, a lot of anxiety and lots of feelings,” she says. “For me, the biggest fear is handing him over and not getting it back.”

Mam Naomi Findle described her daughter Venelope – named after a character in Disney film Vrack -It Ralph – as a “Happy Little Thing”
Surgery is “risky”, Ikenna believes Omeje, Viewed on left operations on the venellope

Explaining the current process, he points to the 3D scan of the chest of the vinelope, and describes how his heart is attached to the thin layer of the skin.

It is “risky”, he confesses.

“You can damage the pot trying to go to the chest cavity,” he said.

Now at the age of seven, the surgeon decided that the venellope had reached the right age for surgery to create a permanent structure around his heart.

University Hospital of Leester NHS Trust
This 3D image shows the heart of vinelope before surgery

The vinelope is first placed on a bypass machine, which temporarily takes the functions of the heart and lungs.

This allows her heart to unholy, allows the “very difficult” process to separate its heart part – the right ventricular outflow path – and the pulmonary artery from where she is clinging to her skin.

Subsequently, there is bilateral rib osteotomy, which involves breaking the ribs of vinelope on both sides to form a protective cage around her heart.

The team says that the completion of all the procedures simultaneously on a patient with Ectopia Cordes was never done before in this country.

Two of the surgeons, Ikena Omje (left) and Nitin Patvordon (right), were in the birth of Vanelope. He joined the operation by Nagarajan Muthiyalu from the Great Ormand Street Hospital.

The extremely complex process is more than nine hours. And this is a success. Surgeons are happy.

Mr. Omje is saying smiling because he says that it is “better than our expectation”.

He explained how he examined the X-ray of the chest of the vinelope after the operation, and called it “really beautiful”.

Mr. Omje called the vinelope “a kind” and told how to complete everything that everything goes so well.

“We get the best satisfaction from this when you get a text message from Mam, for saying that ‘Thank you, you guys are amazing’,” they say.

“I think personally, I have just done my work, but it has made a difference to someone and it is very satisfactory.”

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Venelope is now recovering after surgery on 16 April

The vinelope is taken to the children’s pediatric intensive care unit and will spend some time to recover in the hospital.

After a few weeks, she will be able to unload her protective chest brace and will not require any further surgery in the future.

Her mother called NHS “amazing”, and says she could not wait to take her elder brothers and younger sister’s house.

Looking at the future, he hopes that this surgery will improve the “already, really good quality of good quality” of the vinelope.

And Naomi says that this time, she is ready for a long journey ahead.

“I was afraid when (vannellop) was born. It was very scary for me, but this time I am ready.

“We have found it,” he said.

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More on this story

The child born with the heart outside the body is home

Out baby moves from the outside to the outside

The child has put the heart back inside the chest

Related internet link

University Hospital of Leester NHS Trust

Lester
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